Joshua Levi

February 26, 2010

Here is a list of diagnoses that the doctor has given him:

1)  Most likely has a chromosome abnormality called Trisomy 21 (Down’s Syndrome)

2)  Congenital Heart Defect – Atrial Septal Defect (ASD) – This defect is the most common of heart defects.  It is also known as the “hole in the heart.”

3)  Hepatomegoly – (Enlarged Liver) – Last measured at 23 weeks gestational age was 3.9 cm.  A normal sized Liver at 23 weeks is 2.5 cm.

4)  Right-Side Congenital Diaphragmatic Hernia – RCDH for short – Also known as Morgagni’s Hernia – This is a very serious and rare defect that affects the Diaphragm (Diaphragm is a thin membrane that separates the abdomen from the chest).  It is a hole in the diaphragm on the right side which has caused some intestine and part of the liver to move up into the chest cavity.  This has caused the heart to shift to the left and the right lung to be compressed.

This is it in a nutshell.  We have a Fetal MRI appointment at University of New Mexico on monday at 7pm and need your prayers for our son’s condition.  This will give the doctors 3D pictures of Joshua’s chest and abdomen so that they can assess the situation and advise us on where to go for delivery and the care he will need.  I will post more detailed info on these conditions in the future.  Thank you for your prayers!!!


7 Responses to “Joshua Levi”

  1. Linda Mages said

    Let’s all continue uplifting our prayers to our Father God for a Miracle for Joshua Levi.. He does hear and answer our prayers.. and does miracles everyday.. some which we don’t even recognize.. nevertheless, they exist. I love you guys! Again, my prayers are constant. xoxo

  2. Pat Maestas said

    You have a beautiful family, and you have indeed been blessed. My thoughts and prayers are frequently with you. Please know that you are not alone. Expect miracles!

    Pat Maestas
    (Jackie’s Mom)

  3. Loretta Lamb said

    Praying for you all! With all that I’ve been through this last year by best advice is to keep smiling, laughing, and trusting God. Things don’t seem so formidable and bleak when you’re hanging out with the King of Kings who knows EXACTLY what He is doing. My character has been developed to where I seriously think I am practically perfect like Mary Poppins. :0) Yours will be too! Every one at mom2mom is praying for you and I have a lead on a group in Albuquerque that someone’s sister just left from. I have to track her down. Love you all!


  4. Nancy Crona said

    My little great-nephew! God is blessing us all for his little life. This is a great way to follow his progress.

  5. Mary Campbell said

    My beautiful grandson Joshua Levi. May God bless you and keep you, and may He use your life to bring glory to the Lord! May He also do a great work in you and your life helping to bring others to Christ Jesus. May the Lord show His great mercy and grace in and through your life. I love you Joshua Levi. You are a blessing and a gift and I thank God when I think of you! May God grant you His healing and comfort and may God’s peace be felt by all who are touched by your life.

    I love you,


  6. Harte & Teresa Robba said

    We were distressed and saddened to hear such devastating news. Our prayers and thoughts will be with you and young Joshua and we feel confident that in the end our prayers will be heard and answered and the outcome will be a good one.

    Besides…Jeff will need another excellent center to round out his growing hockey squad! And from the looks of that photo wee Joshua looks like he will be an outstanding addition to any young hockey squad!

    Regards to all!
    Harte, Teresa, Weston & Celine

  7. Lisa Sylvester said

    Such hard news to hear. We are uplifting you, Kelly and Joshua in prayer. It is a comfort to know that God is aware of everything that befalls us. He is our comfort, guide, and hope, allowing us to come to Him to meet our every need. Thank you for the blog.
    With much love, Lisa

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: