What an Exhausting Day

March 18, 2010

Well, we got the results back today from the amniocentesis test that put Kelli in the hospital for an indefinite amount of time. The test came back that he does indeed have Down’s Syndrome with 95% accuracy. These results are preliminary and we will get the full test results back in about a week. They will look for other more rare chromosomal defects in addition to Down’s Syndrome. So far if he is going to have a chromosomal abnormality, Down’s Syndrome is the one to have.  This opens up a whole new realm of complications with his recovery.  It seems that it is not possible to get good news.

Kelli is doing well though.  She is staying hydrated and she hasn’t had any contractions.  Her leaking has slowed but has not stopped as of yet.  As long as she stays quiet, Joshua has a chance at fighting this wall of issues that he is faced with.  Her amniotic fluid levels are basically normal which is a good thing.  The neonatologists came and talked with us today and stated that if he has a chance at survival, he has to stay in the womb until at least 36 weeks.  Also, they do not want Kelli to travel such as she is so Cincinnati is out of the question for next week.  For now it looks like the Fetal Care Center will do a phone consultation when they have had time to do their analysis of Joshua’s data.  From there they might schedule a medical transport to Cincinnati around 34 weeks in which case we will be there until we are able to take Joshua home with us.

It was a long day of doctors and nurses coming in to the room to check up on Kelli.  We are both exhausted and hope to get some sleep.

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5 Responses to “What an Exhausting Day”

  1. Blanca said

    We are praying for you both. Love you so much and we are here for you if there is anything we can do. Love you,
    Blanca and Hans

  2. nicolle said

    (((((HUGS))))

  3. Jennifer Tenney said

    Hugs!
    Continued prayers for Joshua and you all! It is wonderful that you are not losing hope, because there are so many miracles out there! I know … I am the mom to one =).
    Hugs,
    Jennifer
    Mom to Dakota 12-25-2008
    Right-sided CDH/Premie/ECMO survivor
    jennifertrafton@hotmail.com

  4. Tracy Meats said

    Praying for Joshua! I am so sorry the prelim. results of the amnio was not good news. I have a cousin with Down’s Syndrome and he turns 18 this month! I know Joshua has other medical issues too, but there is hope and I am praying you find the right medical team of doctors to care for Kelli and Joshua. Hope you both get some rest and I am praying for your family. (((HUGS)))

    Tracy, Ian’s mom from CHERUBS

  5. Eunice Powell said

    I’ll be praying for your child and your family. I have spent years working with some very special children & adults, many of whom have Down Syndrome. They have brought such joy to my life and are truly blessings from God. Just this morning in my deep water aerobics class, I watched and marveled as one of our classmates, a young woman with Down Syndrome, made perfect dolphin noises as we did one of our exercises. One after another, a smile came to every face at the pool – like a ripple effect. Though you may have some very difficult times ahead, you also will be blessed with times of perfect joy beyond what you could imagine!

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